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Congenital Adrenal Hyperplasia (CAH)

Finding Support & Resources

 Where can I find more information and support related to CAH?
On the Web:

From the Michigan Department of Community Health.

An overview of Sex Development and the biology of CAH, with flash animation and great visuals to aid understanding.

Information about CAH, treatment, surgery, advocacy, and support groups for those affected and their families.

Information about CAH.  Message boards to support those affected and their families.

A national non-profit that provides support services for the families of children affected with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child’s growth.  The foundation also provides support services for adults affected by these disorders.

From the Texas Department of State Health Services.  Also available in Spanish:

An organization that connects parents of children with chronic health conditions to one another, providing the opportunity for parents to share experiences and support one another.

This segment about parenting children with atypical genitals aired October 26, 2009.

General information about CAH.

This link has files that you can download and print to create a Care Notebook—a tool to organize information about your child’s medical care and condition.

A tutorial with audio and pictures to explain all about newborn screening.  From MedlinePlus, a service of the National Library of Medicine and the National Institutes of Health.

Related pages on YourChild:

Related YourChild podcasts:




Written and compiled by Kyla Boyse, RN and Talyah Sands.  Reviewed by David E. Sandberg, Ph.D.

May 2011


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