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Talk to us!
We invite you to send a message to the Games...or if you're here
in Orlando, feel free to send us email to post for all to see!
Write to: transweb@umich.edu
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Subject: 2000
Transplant Games
Date: Tue, 27 Jun 2000 16:23:03 -0400
From: rachester@pepco.com
To: transweb@umich.edu
Good afternoon,
This morning I was able to access your website and enjoy the pictures
and articles posted there. As a member of the donor family from
Maryland that was able to meet with the reciepent family from Arizona
while at the games I was interviewed for a article out in your office
and we had pictures taken while there and everyone of you are be
commended for you efforts, while not being real good with a PC I
was wondering if you could e-mail me the image of me carrying my
son on my shoulders while he was carrying the team ARIZONA sign
into the games with the other donor families, someone from your
staff showed me the image while we were in your office and I would
like to enlarge it and have it framed, I realize everyone is tired
and has a lot of tasks left to do so it's no hurry, I just thought
it would be easier to download than off of the web page.
Thank you from my wife and myself and keep up the good work and
we hope to see you in 2002
Sincerely
Rick Chester
Subject: Interview
Date: Tue, 27 Jun 2000 13:16:56 -0400
From: "Kristin Zimmer"
To: [transweb@umich.edu]
To Bob Garypie,
Thanks for the interview. It turned out better than the previous
ones!
Thanks again,
Kristin Zimmer
Subject: Opening
Ceremonies 2000
Date: Tue, 27 Jun 2000 11:21:58 -0500
From: "Kathy Burdess"
To: [transweb@umich.edu]
I was hoping to be able to get footage of the opening ceremonies
featuring Team EMME. The cameraman had followed my son into the
stadium and he would not look at anyone because he was embarrassed.
If you could help me with this I would appreciate it. Good Job on
the coverage.
Thank-You,
Katie Siesennop
TransWeb replies: Sorry we can't help you. The video was produced
by TransCom Media. Please contact the National Kidney Foundation
(1-800-622-9010) regarding your inquiry.
Subject: swimming
coverage
Date: Tue, 27 Jun 2000 12:09:01 -0400
From: "Karen Wallace" [kwallace@kidneyfla.org]
To: [transweb@umich.edu]
Thank you all for your coverage of the Transplant Games. You have
done a fantastic job! I know it was a difficult job.
Karen Wallace
Associate Executive Director
National Kidney Foundation of Florida
1040 Woodcock Road, Suite 119
Orlando, FL 32803
kwallace@kidneyfla.org
Subject: Badminton
Date: Mon, 26 Jun 2000 21:52:08 -0700
From: "Yuxin Tang" [ytang@stny.rr.com]
To: [transweb@umich.edu]
Hi John,
This is Jianguo Wang. I just came back from Orlando.
Thank you very much for your web coverage about badminton, it looks
wonderful. I am going to forword this website to all my friends
and co-work.
Have a nice day!
Best Wishes,
Dr. Jianguo Wang
Senior Research Engineer
Polymer Core Technology (SP-PR1-W18M)
Science and Technology Division
Corning Incorporated
Painted Post, NY 14870
Subject: Attn:
John Bacon
Date: Mon, 26 Jun 2000 15:38:16 -0500
From: "William D'Antoni" [twoofeach@worldnet.att.net]
To: [transweb@umich.edu]
Dear John,
Just a quick note to say how much I enjoyed meeting you and the
rest of the writers at Transweb.
I got home Sunday night and immediately logged on to your site.
The article about Dr. Chang and myself was quite a delight to read.
I was also moved by many of the other stories that you covered.
Thank you again for your interest in covering the games and i already
know that you will not forget them anytime soon.
Sincerely,
Bill D'Antoni
Subject: 6/25
Date: Mon, 26 Jun 2000 09:18:13 -0700
From: spence1010@juno.com
To: transweb@umich.edu
GREAT WEB SITE OF THE GAMES !!
Subject: Special
thanks - from one who was there...
Date: Mon, 26 Jun 2000 11:13:59 EDT
From: GleasonJim@aol.com
To: transweb@umich.edu
It was so amazing being there with everybody in Florida - and everywhere
one looked there was the familiar purple shirted Transweb staff!!!
Even the great photography doesn't tell the story of the work this
team of volunteers have done - you had to bee there at the stadium
to see Ellie (as just one example of so many) laying on home plate
in the baseball field to get that "perfect shot" for the web broadcast.
At every sport venue, every day, at every event, there was Joel
and his camera, John and his note pad, and everyone else making
the story a world wide event. From all who were there and for all
who attended through your efforts... "Thanks!"
It was very special to be able to talk directly to Bob Merion (Director
of Transweb) and pass along comments directly about the long time
support and benefits his team has offered us in the transplant community.
Subject: TEAM
IOWA & LaVonne, John Card
Date: Mon, 26 Jun 2000 11:13:38 EDT
From: VerJeanM@aol.com
To: transweb@umich.edu
GO TEAM IOWA ! What an excellent web site. Checking it often is
almost like being there with everyone.
Best of Luck and Best Wishes to LaVonne (kidney recipient 96) and
John Card ( brave husband donor) and all their friends and team
members !
I hope they see this. Fellow Iowans, if you see them, pass on greetings
and love from big sis, VJ.
We have such admiration and respect for all involved in donating
and supporting The Gift of Life, and the awesome heroism in overcoming
obstacles and celebrating the gifts you have received.
Warmest regards to all,
VerJean
Subject: Transplant
Games
Date: Mon, 26 Jun 2000 10:03:33 -0400
From: "Rosczewski" [roscz@home.com]
Organization: @home To: [transweb@umich.edu]
Mark Gravel: Great job well done, having a double transplant member
in our famil;y makes us much more aware of how important this
is to someone who is living day to day with hopes. Also working
for 6 years for a woman in the field of transplants with tissue,
arteries and valves you thank each day for a healthy day that
you have. Mark we are so proud of all the effort you put into
your work, what a total satisfaction you must have.
Take care,
Mike and Jan Rosczewski
Keep us informed of anything on the web...
Subject: Re: Special bulletin from the US Transplant Games
Date: Mon, 26 Jun 2000 03:36:21 -0400 (EDT)
From: kimurah@ims.u-tokyo.ac.jp (kimura harue)
To: transweb@umich.edu
At 11:27 AM 0.6.24, Eleanor G. Jones wrote: > Hello from [mostly]
sunny Orlando, where TransWeb is ON LOCATION
Thank you very much for your kind e-mail. I was in a Hospital for
my disease during the US Games. I hoped to attend the your Games
very much. But, I could not to go there. I am very fine to see the
Games in your Internet Home page. I think it will be give a so many
wounderfull feeling to me. And, I would like to invite next WTG
in Japan.
This weeks end, I have to go to Sydney for attend Australian Games.
I would like to send some articles of Australian Games when I back
to Japan.
Harue Kimura
Subject: Re:
Special bulletin from the US Transplant Games
Date: Sun, 25 Jun 2000 16:43:03 EDT
From: LBSlagle@cs.com
To: transweb@umich.edu
Hi, Eleanor! I met you at the 1998 games. This year, the 2000 Transplant
Olympics conflicted with the Washington, DC AIDS Ride (cycling 330
miles in 4 days from Raleigh NC to Washington DC) to which I was
committed. I (a heart transplant recipient) and a liver recipient
did the ride. I'm not sure if the liver recipient did every mile,
but I did. (For a Washington Post article on the two of us, among
other persons with medical issues, see the Metro Section for June
24, which I think you can find at www.washingtonpost.com.) I missed
competing the in the transplant Olympics, but I think the 330 mile
ride demonstrates the incredible value of organ donation and the
evident fact that transplantation is indeed a "gift of life" and
not a concession to existence as a "patient."
--Larry Slagle
Heart Recipient, May 19, 1995 |
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Subject: Re:
Special bulletin from the US Transplant Games
Date: Sat, 24 Jun 2000 15:57:24 -0500
From: "Mary E. Vinson" [vince@netbci.com]
To: transweb@umich.edu
Thanks so much for the great coverage of the games. One recipient
and his two children and a donor mother and her son are attending
from our local support group. Makes me feel like I'm almost there
with them especially with the webcasts. Do you ever use regular
volunteers like myself (No programming experinece, just typing)
to help at the site for the coverage? I would love to plan to go
two years from now and maybe would feel I could justify the expense
if I was going to DO something. Keep up the great work.
P.S. Have used your site often to print out information to use in
Organ Donor Awarness speaking.
Mary E. Vinson - single lung receipient from Tupelo, MS
Transplant-Barnes-Jewish, St. Louis, MO - 3 years ago
Subject: debbie
chick
Date: Sat, 24 Jun 2000 20:06:55 EDT
From: DavePolaris007@aol.com
To: transweb@umich.edu
hello to Games participants debbie and pete. this is a great website!!!
I see you did well in the badminton event. hope you enjoyed the
other events. did you get to and talk with larry hagman, oscar robertson
and sean elliot ?? love to all involved with the games.....
sue and her guys
Subject: Re: [TRNSPLNT]
2000 US Transplant Games where TransWeb is ON LOCATION
Date: Sat, 24 Jun 2000 21:16:47 -0400
From: "Roy Toutant" [toutant@worldnet.att.net]
To: [TRNSPLNT@WUVMD.Wustl.Edu], [transweb@umich.edu]
Eleanor and Transweb Team,
Great job on the web site! It is really excellent.
Wife Susan (liver transplant 10/99) and I were hoping to go but
this is the next best thing. Susan is helping her mother recover
from cancer surgery, and besides she says her golf game isn't yet
in good enough shape. Although that didn't stop her from beating
me a few weeks ago.
Our state (KY) sent close to 100 people including the Lt. Gov. and
his fiancee, who is Miss America.
See you in 2002, I hope.
Thanks Roy T.
Subject: Fw: Guy
Petersens remarks on the Opening
Date: Sat, 24 Jun 2000 20:48:42 -0500
From: "Donna Parrish" [donna-p@zebra.net]
To: [transweb@umich.edu]
From: Donna Parrish
To: transweb@umich
Sent: Saturday, June 24, 2000 8:44 PM
Subject: RE: Guy Petersens remarks on the Opening
I have to express how important it is for the donor family to hear
from the recipient family. No of course you don't have to. But I
must tell you my story, because we all have a story. My 11 1/2 year
old son was a donor by his own choice. Donating is something I personally
believed in but never expressed. When he came to me one evening
and asked if he could be a donor if anything ever happened to him,
I agreed thinking like all parents, that nothing would ever happen.
Three weeks later he was hit while riding his bike. This was in
October 1989. We carried out what I considered to be his last wish.
He was a donor. After 10 years we received a letter from the wonderful
lady that was his heart double lung recipient. That was one of the
most joyous days I had ever had since his death. I can't tell you
what it meant to know, really know, that his wish had come true.
He really helped someone to live. Just a short note saying thank
you and a short message about yourself. Knowing her has taken a
true physical pain away from me that I had when I thought of Scotty
and missed him so. Nancy (his heart lungs recipient) weighed only
67 pounds, was on oxygen 24 hours a day, and had to sleep with several
pillows, sitting up all her life. Nancy Smith is in the games this
week, part of the Alabama team. Her family and ours are very close.
She is a wonderful person. She has supported so many people waiting
for transplants. it is such an honor to know her and her family.
Please write your donor family's. I might also add, donor families
you can write too. I did not know this until I got Nancy's letter.
But the recipient usually feels like thank you is not enough. But
really and truly, it says more than that. It says "because of you,
I live!" What more could a donor family ask for, than to know. God
Bless all the recipients at the game and everywhere. And also Donor
families I know your pain. And also the joy of knowing Nancy.
Donna Parrish
Subject: Go Team
New Mexico
Date: Sun, 25 Jun 2000 09:10:31 EDT
From: KA5FRB@aol.com
To: transweb@umich.edu
Good swim show Bob Skaggs.
Happy birthday Bob wish you continued health and success.
Tom & Gloria
Los Lunas NM
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Subject: Hello
Iris Epstein (Team Florida)
Date: Sat, 24 Jun 2000 08:11:56 -0400
From: "sherri benus" [slbenus@optonline.net]
To: [transweb@umich.edu]
Good Luck in your Table Tennis Event...
GO TEAM FLORIDA
Hope You and Dad are doing well and are having a GREAT TIME.
Love, Sherri and Gene
Subject: we are
watching you
Date: Fri, 23 Jun 2000 23:07:49 EDT
From: CSmith3463@aol.com
To: transweb@umich.edu
Hello there
We are watching the website. It looks great. We will anxiously await
new developments.
Cheri
Subject: TEAM
ARIZONA!!
Date: Fri, 23 Jun 2000 14:35:03 -0700
From: Leslie Futral [Leslie.Futral@dnaz.org]
To: "'transweb@umich.edu'" [transweb@umich.edu]
<<...>> GOOD LUCK TEAM ARIZONA!!!! <<...>>
WE Wish you continued success!
You guys are great!
From: DNA Staff
Subject:
Date: Fri, 23 Jun 2000 20:18:17 -0400
From: "Joan Kollar" [jokollar@mediaone.net]
To: [transweb@umich.edu]
Website looks GREAT Team Transweb!!!!!
Keep up the good work, have fun and stay cool!!!!
and......GO TEAM MICHIGAN!!!!!!
Subject: Go Team
Western PA Northern WV
Date: Fri, 23 Jun 2000 22:12:45 -0400
From: "tagoode" [tagoode@email.msn.com]
To: [transweb@umich.edu]
Sorry I couldn't be there with the team,had been looking forward
to the games since we left the last ones in 98. I would have come
as spectator but my recovery from, emergency appendectomy on June
3rd has been slow in healing.Mark , Malachi, and Nathan sorry I
can't spell you guys at the games, but I know there are three determined
guys who will give it all they've got. Hey if anyone see's Sean
Elliot tell him to look for the Gold Medal I sent him months ago
, I was dissapointed to miss him at the games, because I had really
been pulling for him, and glad to see he made it.He has been a real
insperation to many with his strength of conviction. Good luck to
all athletes, with a little extra for team Western PA ,Northern
WV. Thanks Transweb for letting me be part of the games the only
way I can be right now.
Tim Goode
Subject: All Participants
- Donors, Recipients and Families
Date: Sat, 24 Jun 2000 08:25:43 -0700
From: Fred Zealor [fredz@pacbell.net]
Organization: Pacific Bell Internet Services
To: transweb@umich.edu
Five years ago June 10th, 1995 my wife Sally received a Liver at
U.C.S.F. - at that time she had less than 48 hours. Today, she is
with you at the games as a member of Team Northern California -
assisting the team photographer. We say a potential donor has a
"Miracle in their pocket" - the Donor Card. All of the participants
at these games prove this statement. You are ALL winners! Good luck
and God Bless ALL of you!
Fred Zealor
Liver Transplant Support Person
Grateful Husband
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Subject: TEAM
ARIZONA!!
Date: Fri, 23 Jun 2000 14:35:03 -0700
From: Leslie Futral Leslie.Futral@dnaz.org
To: "'transweb@umich.edu'" transweb@umich.edu
<<...>> GOOD LUCK TEAM ARIZONA!!!! <<...>>
WE Wish you continued success!
You guys are great!
From: DNA Staff |
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Subject: team
IL
Date: Fri, 23 Jun 2000 03:18:14 -0500
From: "Nancy Mackrola" [hannahmack@home.com]
To: [transweb@umich.edu]
GO TEAM ILLINOIS!!
GOOD LUCK IN ALL OF YOUR EVENTS. HAVE A BLAST AND A SAFE TRIP
HOME.
nancy mackrola
hannahmack@home.com
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Subject: Hello
Ashlee Boepple
Date: Thu, 22 Jun 2000 21:12:59 -0400
From: "Mark and Mary Karl" [mboepple@mindspring.com]
To: [transweb@umich.edu]
Ashlee Boepple:
We hope that you are doing well and are having a good time!
We miss you!
Love, Daddy and Mary Karl
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Subject: 2000
US Transplant Games
Date: Thu, 22 Jun 2000 12:08:30 -0400
From: "Guy N. Peterson" guynpeterson@email.msn.com
To: "Guy N. Peterson" GuyNPeterson@email.msn.com
Wow! Let the
games begin! The first day started with a grueling registration
process for most of us, in incredible heat and humidity. For many,
it took three or four hours.
The outdoor
opening ceremonies in the baseball stadium were delayed for an
hour and half due to a little bit of rain and mostly the danger
of lightning. All the time waiting was spent talking and sharing
with fellow athletes and donor family members. I was especially
moved by all the sharings of the donor family members on our team.
For all of them, this was their first games and their reaction
to being among so many grateful recipients was truly moving. The
donor families first got to parade in among their team members
and then reassembled to enter as a group, to be acknowledged for
what they had done.
However, as
I learned later that night, they were totally unprepared for the
reception they got from the ALL the assembled team members and
spectators when the walked in to the packed stadium as a group.
Well, you can
just imagine the reception we gave them. We immediately rose to
our feet upon the announcement of their entrance and proceeded
to give them a standing ovation for a least fifteen minutes as
each a every one of them walked thru the field and up into the
stands.
As a team OHIO
member, I was especially fortunate, as the donor families came
up into the stands by the way of the stairs that were right along
side us. As we looked into each and every one of their faces,
many of us got to personally say thank you and shake the hands
of many of the donor family members. The look on their faces was
incredible, a mixture of sadness, joy, and a little bit of shock
I think. It was a very moving experience for all of us.
The next longest
and loudest standing ovation was for Sean Elliott(NBA basketball
player and kidney recipient from his brother). Again, as famous
as Sean is, he too was truly unprepared for the reception we gave
both he and his brother. His comeback in the world of professional
sports is unparalleled in the transplant recipient world. Sean
really is a shining example of what can be done with this gift
of life that most of us on the TRNSPLNT newsgroup have received.
I want to try and meet him tonight just to shake his hand and
thank him for the incredible shining example he is of what is
possible for a transplant recipient.
Later in the
program, a member of a donor family came to the podium to speak
for all donor families and received another long standing ovation.
All in all, it was a wonderfully moving and celebratory opening
ceremonies, and after the lighting of the flame, it ended with
all of us shouting "Let the games begin!" and a beautiful fireworks
display. What a way to celebrate my 45th birthday!
I left out many
other details of what occurred and only touched on some of the
high points. For complete coverage of the games, go to http://www.transweb.org/webcast/usa2000
As of 11:30 AM EST Thursday, the site has not been updated with
the first day's events, but if you check back through out the
day, I'm sure it will be up and running soon.
I'm looking
forward to the Donor Recognition Ceremony tonight and the TRNSPLNT
get together afterwards.
After speaking
with many donor family members, who I found to be actually pretty
understanding of what each of us goes through before and after
transplantation, they still would like to hear from the recipients
of their loved ones organs, even if it has been over nine years
since your transplant. A simple preprinted thank you note signed
with only your first name, or even just "Your Recipient", would
do just fine. You would normally send this through your OPO, and
then it would be anonymously forwarded to your donor family. Promise
yourself to do it this weekend. It will make such a difference
in their lives. You can even specify to your OPO that you don't
want any letters from them forwarded to you, if that is your wish.
Please make this commitment now, even if your transplant rejected
and/or was unsuccessful. YOU can really make a difference!
With love, Guy
GuyNPeterson@email.msn.com
Kidney transplant recipient, 7/02/98 OSUMC
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