Cerebral Palsy Research Consortium of Michigan
The Cerebral Palsy Research Consortium of Michigan (CPRCoM) is a collaboration of researchers and health professionals within the State of Michigan who are establishing a Cerebral Palsy Research Registry. The CPRCoM has been approved by the University of Michigan’s Institutional Review Board (IRB HUM00034648). The goal of CPRCoM is to promote and accelerate cerebral palsy (CP) research aimed at measuring prevention strategies, treatment outcomes, and maximizing quality of life and community participation for persons with CP. United Cerebral Palsy of Michigan and the Ann Arbor Center for Independent Living are community partners of the CPRCoM.
The CPRCoM has developed a research registry that is open to ALL individuals with diagnoses of CP. The registry will maintain a list of individuals with diagnoses of CP who wish to be contacted when opportunities for research participation arise. Registrants can also indicate a desire to receive recent research findings, community resources and other timely information related to CP through the dissemination component of the registry. Registration DOES NOT require that you participate in research, rather it indicates that you are willing to be contacted by consortium researchers if a study for which you qualify is recruiting participants.
The only criterion for participating in this registry is that you/your family member must have a medical diagnosis of CP.
Joining the CPRCoM registry is strictly voluntary and confidential, and will not enroll you or your family member in a study. Participation can be withdrawn at any time at the request of you/your family. Once you have joined the registry, you can expect to:
- Complete a short 14 question survey
- Be contacted by a research representative from participating consortium sites that have identified you as a good potential fit for a current or upcoming study related to CP. This determination is based upon the responses to the 14 question survey.
- Receive CP-related research findings and information about education and/or vocational opportunities and community events from the members of the CPRCoM and their community partners.
Follow this link to register online with The Cerebral Palsy Research Consortium of Michigan
Or by phone (734) 936-6023 or e-mail at PMR-CPRegistry@med.umich.edu