Slideshow with images from the Mott Golf Classic Event, held on 6/3/13.
The Mott Golf Classic Committee is honored to have six year old Peyton Domzalski as our special guest at this year’s golf outing, and we are grateful to the Domzalski family for sharing their story.
Leanne Domzalski has the unique perspective of being a mother whose youngest child, Peyton, has spina bifida and also a nurse (a career that she chose because of how nurses helped her family).
In 2006 Peyton was born at a community hospital and then quickly transported by ambulance to the University of Michigan C.S. Mott Children’s Hospital’s Neonatal Intensive Care Unit. Leanne doesn’t take that convenience of being close to Mott for granted. She says, “We are super fortunate to be so close. I won’t move out of Michigan because of Mott.”
Spina Bifida is a birth defect when the spinal column does not close all the way. Peyton has Myelomeiningocele, the most severe form of Spina Bifida, which involves the spinal cord and nerves coming through the open part of the spine.
Leanne calls the weekend Peyton was born as “their lucky weekend” because they met Dr. Hugh Garton, Associate Professor of Neurological Surgery, for the first time. He performed the first surgery on Peyton. Dr. Garton has a special bond with Peyton and the Domzalskis respect and appreciate him very much.
Six years and ten surgeries since their family became introduced to Mott Children’s Hospital, the Domzalskis still feel very fortunate that Peyton is able to get care at Mott Hospital. They are grateful to Dr. Michelle Caird, Assistant Professor, Orthopaedic Surgery, who has performed all of Peyton’s orthopaedic surgeries that have helped Peyton to stand and even walk. They also credit Dr. Liza Green, Assistant Professor, Physical Medicine and Rehabilitation for her integral role in Peyton’s healthcare and all of her work to coordinate and plan surgeries and services. The Domzalskis appreciate all of the staff who are so invested in helping patients and families.
Leanne recalls hoping that the surgeons could one day help Peyton stand, so they are thrilled at his progress and his ability to walk with assistance. Peyton is an active kid who enjoys life. He plays baseball in the Plymouth Miracle League, and golf is his favorite sport. He can spend hours hitting golf balls.
As a nurse in Mott Hospital’s Pediatric Cardio-Thoracic ICU, Leanne has seen firsthand how the Mott Golf Classic has helped Mott patients and families. She says, “The Ronald McDonald House within the hospital helps relieve parents’ anxiety. If parents get a phone call in the middle of the night they can go in their slippers to their child’s room.” Also, she has seen how social work’s support has helped families in need. The Mott Golf Classic, through social work, helps families with day-to-day financial challenges.As a mom and as a nurse, Leanne has witnessed what the University of Michigan C.S. Mott Children’s Hospital can offer to families in terms of care and caring. She is grateful that her son and family had access to the “very best” care possible.
M&M Blue visits kids at Mott, 2013.
Blue Visits Kids at Mott
It is nearly impossible to describe our day at C.S. Mott Children's Hospital on June 4th 2012. I am not sure I have ever had such a rewarding experience.
My sister and I spent the morning drive preparing ourselves for the sadness that hovers in every hospital corridor. The fact that we were going to be visiting kids made it even more difficult. Upon arriving, we met with hospital staff to receive our instructions, met with the larger-than-life Blue, and then headed upstairs with more than 200 plush M&M characters. Growing up an M&M kid, I have always known how people smile when you utter the name of these chocolate treats, but I was not prepared for the many people that surrounded Blue before we even made it to the elevator. Parents and kids alike gathered around with smiles on their faces and open arms to receive their new toys. It was impossible to feel a bit of sadness in the midst of such joy. One young girl held her yellow M&M close as she wrapped her arms around Blue, a picture captured forever in my memory.
As we made our way upstairs we were surprised to find no daunting hallways, white walls or bright lights. Instead there were beautiful pieces of children's artwork lining the walls, colored tiles on the floor, observation windows and telescopes in the corners. Each child's room had enough sunlight that many didn't even have their lights on. The rooms were personally decorated by each child with posters of sports teams and musicians held to the walls with butterfly magnets. Their handwriting and drawings lined the extra wall space made of dry erase surfaces. They had their own private bathrooms and showers with rooms large enough that their parents could stay close to their kids in their time of need. There was no hospital smell and there were no gloomy faces. I barely recognized the hospital staff in their kid-friendly attire and their smiles relieved many fears. I have never seen such a remarkable medical facility with such an amazing staff.
One young girl was unable to greet Blue in person; the risk for germs was just too high. As she put her hand on the glass window, Blue placed his there as well. In that moment, I knew what we had come to do: to lighten the load for these kids for just a moment, to bring a smile that just couldn't come in the morning, to take a picture of a family with a giant M&M and give a toy for a child to hold close when they needed a friend. In a place where we expected to see tears, we saw smiles. Where we imagined pain, we saw laughter and where we expected fear, we saw hope - in the eyes of the children, the smiles of the staff and the strength of the parents. While the golf outing was beautiful, the courses immaculate, there was no place I would have rather been than with those kids.
This hospital is not a hospital, it’s a home. It's a home where children are safe, where they can create, go to school, meet new friends and fall asleep knowing that their parents are near. It is remarkable thing to see a child smile, but knowing that you could possibly contribute to the laughter of a child and their parents, that's not something I can even put into words.Left to Right – Nicole Jameson, Kelly Jameson & Tom Jameson (Mars Associate)
FRANK BECKMANN BROADCASTS FROM MOTT
The Mott Golf Classic Family was happy to welcome Frank Beckmann to Mott & Women's Hospital on February 13, 2012, to sponsor his broadcast from the Family Resource Center on the 8th Floor of Mott.
Here, Frank talks with Ora Pescovitz, MD, Executive Vice President for Medical Affairs and CEO, University of Michigan Health System, about the new C.S. Mott Children's Hospital and Von Voigtlander Women's Hospital which opened in December, 2011.