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Patient Information
Information from Baxter Healthcare Corporation

(NOTE: The following information provided as received from Baxter, November 2004, with no obligation on Baxter's part to update the files. Users may wish to contact Baxter prior to relying upon the information contained therein.)

Stay In Touch™ Topic Sheets

American Association of Kidney Patients (AAKP)

http://www.aakp.org/

The American Association of Kidney Patients (AAKP) exists to serve the needs, interests and welfare of all kidney patients and their families. It's mission is to improve the lives of fellow kidney patients and their families by helping them to deal with the physical, emotional and social impact of kidney disease.

American Kidney Fund

http://www.kidneyfund.org

The nation's number one source of direct financial assistance to kidney patients and a leader in providing education to those with and at risk for kidney disease.

National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

http://kidney.niddk.nih.gov/index.htm

The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) is an information dissemination service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes of Health (NIH), one of eight health agencies of the Public Health Service, which is under the U.S. Department of Health and Human Services. The NKUDIC was established to increase knowledge and understanding about diseases of the kidneys and urologic system among people with these conditions and their families, health care professionals, and the general public.

National Kidney Disease Education Program (NKDEP)

Information for patients and the public:
http://www.nkdep.nih.gov/patientspublic/index.htm

Education materials and resources:
http://www.nkdep.nih.gov/educresources/index.htm

The National Kidney Disease Education Program (NKDEP), an initiative of the National Institutes of Health, is designed to reduce the morbidity and mortality caused by kidney disease and its complications by raising awareness of the:

  • Seriousness of kidney disease.
  • Importance of testing those at high risk.
  • Availability of treatment to prevent or slow kidney failure.
National Kidney Foundation (NKF)

Patient and family education:
http://www.kidney.org/index.cfm?index=patients

The National Kidney Foundation is a major voluntary health organization seeking to:

  • Prevent kidney and urinary tract diseases
  • Improve the health and wellbeing of individuals and families affected by these diseases
  • Increase the availability of all organs for transplantation.
National Kidney Foundation of Michigan

http://www.kidney.org/site/index.cfm?ch=306

The mission of the National Kidney Foundation of Michigan is to:

  • Prevent and eliminate diseases of the kidney and urinary tract.
  • Enhance the quality of life to people with chronic kidney disease through education, services, advocacy and research.
  • Increase organ donation.
The NephCure Foundation

http://www.nephcure.org

The NephCure Foundation is committed to seeking a cause and cure for Nephrotic Syndrome and Focal Segmental Glomerulosclerosis (FSGS).

Michigan Chapter:
http://www.nephcure.org/Chapters_michigan.htm

The PKD Foundation

http://www.pkdcure.org

The only organization in the world dedicated to improving clinical treatment and discovering a cure for Polycystic Kidney Disease (PKD).

Renal Network 11

http://www.esrdnet11.org/

Renal Network of the Upper Midwest, Inc. (Renal Network 11) is one of eighteen networks in the United States established by the federal government to improve the quality of dialysis and kidney transplant services for people with end-stage renal disease (ESRD). Serves health care consumers and service providers in Michigan, Minnesota, North Dakota, South Dakota and Wisconsin.

Dialysis Finder

http://www.dialysisfinder.com/

Locate dialysis centers anywhere in the United States.

iKidney.com

http://www.ikidney.com/

iKidney.com is an online resource bringing together people with kidney disease, their family members and renal care professionals in a worldwide community dedicated to improving patient quality of life.

Kidney Directions

http://www.kidneydirections.com/us/eng.htm

Kidney Directions is an online resource for people with kidney disease and their caregivers, family and friends offering basic information about kidney disease (causes, symptoms and tests), ideas to help maintain health and a detailed description of treatment choices.

Kidney End-of-Life Coalition

http://www.kidneyeol.org/

Dedicated to end-of-life care for kidney patients. Mission is to promote effective interchange between patients, families, caregivers, payers and providers in support of integrated patient-centered end-of-life care of chronic kidney disease (CKD) patients.

Kidney School

http://www.kidneyschool.org/

Kidney School is an interactive, web-based learning program designed to help people learn about and understand kidney disease and its treatment, adjust to kidney disease, make good medical choices and live life as fully as possible.

Living Donors Online!

http://www.livingdonorsonline.org/

Online community for living donors, potential donors, their families, and the medical community.

Medicare Information Source

http://www.medicare.org/

Senior resource center for Medicare information - basic information about Medicare, services related to Medicare and services for people with Medicare.

NeedyMeds

http://www.needymeds.com/

A non-profit organization helping people who cannot afford medicine or healthcare costs. Information is available anonymously and free of charge. .

Nephron Information Center

http://nephron.com/

The Nephron Information Center is an online resource designed to help the public, patients and physicians advance their knowledge and better understand kidney disease and its major causes, diabetes and hypertension.

Renal Support Network

http://www.rsnhope.org/index.php

A nonprofit, patient-focused, patient-run organization providing non-medical services to those affected by chronic kidney disease (CKD). Among their many programs is a unique, online radio talk show called "Kidney Talk!

 

 
   
   

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