How can I help?
We are recruiting HSP subjects and their relatives from both large and small families. We are collecting information such as the age at which symptoms began, and the nature and severity of symptoms in order to define the full spectrum of clinical involvement of HSP. We also analyze blood samples to help identify the HSP genes. All information is handled in strict medical confidence as specified in the University of Michigan Institutional Review Board approved protocol.
If you or your relatives would like to participate in HSP research please contact
It is extremely important to investigate the pathology of spinal cord degeneration in HSP. This requires examination of autopsy materials. Such donations are extremely important, but rarely obtained. To discuss this important contribution to HSP research please contact Dr. John K. Fink at the address listed above.
Research to identify the cause and treatments for HSP is very expensive. Contributions for HSP research may be sent to
All funds are used exclusively for research to discover the causes and treatments for HSP.